my beautiful friend Jen is a new mom and on October 5th, 2009, her sweet baby Aidan James was born with jaundice. After several weeks in the hospital and a battery of tests on
the
poor little guy, he was diagnosed with Biliary Atresia, a rare
condition
involving his bile ducts being closed, malabsorbtion of nutrients
particularly fats and vitamins, and cirrhosis of the liver as a result
of poor
bile flow out. Despite surgery that removed his bile ducts and gall
bladder and replacing them with a section of his intestines, his
prognosis is
not good. The surgery has not been considered a success, and Aidan is
having a very difficult time growing due to malnourishment )-I do believe he's under 18 lbs), and he has
also
fallen developmentally behind. It is expected that he will need a
liver
transplant in the next few years.
Despite having a roadblock
of a
swollen abdomen, the discomfort that comes with chronic diarhea and
vomiting, and the ongoing hospitalization and tests/torture he is put through to give him
the best
care possible, Aidan is surprisingly a happy and brave little boy! He
brings so much joy to their lives... enjoys trying to stand on his legs
in
mommy's and daddy's laps, and playing "gotcha" with his parents, and
when the
mood is right, he will just start giggling and it being so contagious,
he
reminds us all just how wonderful life is.
So, Amber and I have chosen to have a fundraiser crop on June 27th to just pay it forward and to show Jen how much we love her-both Amber and I understand what she's going through since we both have kids that had medical issues in the past. The Evite has been sent out tonight with all the private details so if you didn't get it and want to join us, just respond via facebook or here @ blog! We will also be setting up a PayPal account before the crop for those of you cyber pals who want to donate ANYTHING towards his medical bills...this medicines alone are more than $ 500 out of pocket each month!!
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Thanks for leaving some L-O-V-E !